| May 28,
2009 |
ASF
Summits Mount Everest
MY TRAINING PARTNER --- Oliver
Dillon, my grandson, is my inspiration and my hero. He is
8-years
|
| May 10,
2009 |
ASF
Funded Studies at UNC-Duke Suggest Basis for Learning
Difficulties in AS
CHAPEL HILL -- How might
disruption of a single gene in the brain cause the severe
cognitive defi
|
| May 10,
2009 |
ASF
Funded Research Reveals Information About Visual Cortex In AS
Brain
Durham, N.C., and Chapel Hill,
N.C. -- Researchers at Duke University Medical Center and the
Univ
|
| April
2009 |
|
|
My
Daughter, My Angel
One physical therapist is determined to keep a child with
Angelman Syndrome fighting to achieve more. |
|
Medical
family tackles rare genetic disorder In fight against Angelman Syndrome, sisters help organize
walk-a-thon |
| March
2009 |
|
|
A
daughter's genetic disorder leads to a ministry of hope in times of
crisis.
Larry and Lisa Jamieson of Maple Grove found their lives upended
when their third child was born |
|
James
just loves his water therapy
During the past year Julie Taylor, of Kirrawee, has given up her
Saturday afternoons to teach Jam |
|
Rare
Syndrome Families Unite to Bring National Walk to Cincinnati
Families
from the Rare Syndrome Playgroup, that launched 1-1/2
|
|
Buddy
System James Fraser and Stella Rocha are best buddies. |
|
|
A
Smile Worth a Thousand Words Imagine a child that makes friends everywhere she goes just on the
strength of her smile. If you' |
|
Sherry Hana knew
something was wrong shortly after her second son was born. Call it
mother's intuition, but things felt different this time around.
|
|
Personal
experiences lead to personal training for busy moms
By Kim Mikus | Daily Herald Staff
|
| February 2009 |
|
|
State
honors rare disease sufferers
To Covington County residents, Brady Fore is already a somewhat
well-known name. After today, all
|
|
A
Gift Beyond Words
A young girl is making a difference in her own way. Sarah
Kacsuta described her 14-year-old |
| January 2009 |
|
|
Woman
Seeks Help Caring for Handicapped Son WFMZ-TV
Online, PA - Jan 14, 2009>> FARRIS: Debbie
Lobb's son Adam has Angelman's Syndrome, a rare disease that's locked
him in a state of infancy. The Warren County family is reaching out ... |
|
More
than meets the eye
Scarlet Scuttlebutt, NJ - Dec
29, 2008
Desatnick was diagnosed with Angelman syndrome, a genetic disorder
that causes developmental delays and neurological problems. |
|
A
new year, a new hope for Noah by
Andrea Schneider
TAZEWELL—He’s a little boy who loves swimming in the pool and
being outdoors. He is fascinated by nature and has a smile that can
light up a room,but this little boy has not had it easy |
|
Harvey
back with the Rockies
Rocky Mountain News, CO - Dec
23, 2008
“She has Angelman Syndrome, which is very rare. Last year she
probably spent a little over a month in the hospital. We never know with
her; we never know ... |
|
Building
with gingerbread at school Students borrow fund-raising
Gloucester
Daily Times, USA - Dec 27, 2008
Amelia's parents, Scott and Julie Young, brought their daughter who
suffered from Angelman syndrome, to the elementary school
playground on a regular basis.
|
| December 2008 |
|
|
Basking
Ridge boy continues health transformation at Matheny School
When he was 18 months old, Bryan Desatnick of Basking Ridge began
having seizures. Those episodes
|
| November 2008 |
|
|
Live,
Intranasal Influenza Vaccine
2008-9 Information bulletin from CDC: |
|
Colin
Farrell Says His Son James Is Doing Well
Colin Farrell said Tuesday that his 4-year-old son James, who has a
rare neuro-genetic disorder
|
|
In
a Novel Theory of Mental Disorders, Parents’ Genes Are in
Competition
Benedict Carey/The New York Times |
| October 2008 |
|
|
Deceptively
Happy: Mysterious Syndrome Often Misunderstood
Dan Childs/ABC News Medical Unit |
| July 2008 |
|
|
"God
Makes These Kids For A Reason"
Donna Lenz Wright/The Week, Walworth County |
| February 2008 |
|
|
Syndrome
Silences Children
CNN's Sanjay Gupta reports on a rare genetic disorder known as
Angelman Syndrome. |
The
Winthers Family in Auckland feature in the Western Leader
21/08/09