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Supporting Families who have Children with Angelman Syndrome Contact us by email humphries@angelmansyndrome.org Phone 03 387 0036 |
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Supporting Families who have Children with Angelman Syndrome Contact us by email humphries@angelmansyndrome.org Phone 03 387 0036 |
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| The International Angelman Syndrome Organisation (IASO) Website: www.international.angelmansyndrome.org Email: Melanie.Barton.IASO@angelmansyndrome.org The IASO was founded as a world-wide 'umbrella' organisation of national Angelman syndrome associations. It is politically neutral, with no discrimination as to race, sex, colour or religion, and is non-profit-making. One of its main duties is to help translate and distribute written material on AS in several languages |
Brazil Associaçăo da Síndrome de Angelman (ASA) Website: http://users.siteplanet.com.br/asa (5th October 2005 - currently, this link is not working) Email: asangelman@siteplanet.com.br International contact: Gustavo Astua - gamo@centrodecitricultura.br |
| Canadian Angelman Syndrome Society www.angelmancanada.org Email: info@AngelmanCanada.org International contact: Terry Singleton - t.singleton@shaw.ca To educate concerned families, the medical and educational communities, the general public, and other interested organizations and individuals on the diagnosis, treatment, management and prevention of the handicapping conditions associated with Angelman Syndrome. |
Denmark Angelmanforeningen i Danmark Website: http://www.angelman.dk Email: angelman@angelman.dk International contact: Vibeke Nicolaisen - angelman@angelman.dk |
| Finland Suomen Angelman-yhdistys (SAY), Finnish Angelman Syndrome Society (FASS) Website: http://www.kvtl.fi/angel/angel.htm Email: rautu@kanetti.net International contact: Tuula Rauhamaki - tuula@vesiliikunta.com |
France Association Francophone du Syndrome d'Angelman (AFSA) Website: http://www.angelman-afsa.org Email: infos@angelman-afsa.org International contact: José Santos - lajoanau@aol.com |
| Germany Angelman e.V. Website: http://www.angelman.de Email: mac.barton@t-online.de International contact: Mélanie Barton - mac.barton@t-online.de |
Israel Irgun Mispachot Angelman (IMA) Email: satlow@ndsisrael.com International contact: Shabtai Atlow - satlow@ndsisrael.com |
| Italy Organizzazione Sindrome di Angelman (O.R.S.A.) Website: http://www.sindromediangelman.org Email: orsa@sindromediangelman.org International contact: Carlo Grilli - orsa@sindromediangelman.org |
Japan Japanese Angelman Syndrome Support Group (JASSG) Email: mimasak@attglobal.net International contact: Masako Mizukawa - masako-m@ck9.so-net.ne.jp |
| The Netherlands Dutch Angelman Syndroom Association Prader-Willi/Angelman Vereniging Website: www.angelmansyndroom.nl Email: werkgroep@angelmansyndroom.nl International contact: Tamara Stranders - T.Stranders@fvo.nl |
Spain Asociación Síndrome Angelman de Espańa (A.S.A) Website: http://www.autismo.com/angel/asa_espa.htm Email: acapdevila@mx3.redestb.es International contacts: Juan and Maria Palomares - jjdelamo@openbank.es |
| Sweden Angelmans Syndrom Föräldrarförening (ASF) Email: a.lack@telia.com International contact: Annette Lack - a.lack@telia.com |
United Kingdom Angelman Syndrome Support, Education and Reseach Trust (ASSERT) Website: http://www.angelmanuk.org Email: contact@angelmanuk.org International contact: HJ (Jim) Brennan - jim.brennan@whsmith.co.uk |
| USA Angelman Syndrome Foundation (ASF) Website: http://www.angelman.org/angel/ Email: info@angelman.org International contact: Hal Lippman - hlippman@usaid.gov |
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| Contacts in Countries with no National Associations: Egypt Amira Khalifa - akhalifa@idsc.net.eg |
Belgium and Luxembourg Section - Angelman Afrahm Patrick Haverbeke - angelman@belgacom.net |
| Ireland Rosemary Teggin - rosemaryteggin@eircom.net |
Mexico Marina Cardoso marinacardoso@terra.com.mx Website: http://sebastianresendiz.tripod.com.mx/angelman |
| Poland Janusz Rozalski - rettsyndrom@pf.pl |
